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NHS threatens to stop two-year-old's treatment - because parents want to buy him new legs from the U.S.
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21 June 2008
All he wants to do is jump in puddles with his friends.
But Harvey Parry, who lost his legs to meningitis a week after starting to walk, faces a lifetime of uncertainty.
The NHS has threatened to halt part of the two-year-old's treatment because his parents plan to buy him a new set of legs through a private healthcare company.
Uncertainty: Two-year-old Harvey Parry lost both his legs and part of his hand after he contracted meningitis, but the NHS has threatened to stop treatment if his parents buy him new legs through a US healthcare company
Ever since doctors had to amputate both legs and part of his right hand in March 2007, the NHS has been trying to find suitable replacement legs.
All those offered to Harvey did not fit or did not work properly.
His 46-year-old parents Carol and Jonathan, who are full-time carers, then began a campaign to raise money for state-of-the-art limbs from a clinic in the U.S.
But if the £25,000 legs are fitted privately, Enfield Primary Care Trust in North London, said it would no longer provide ' support or maintenance' for them.
The case echoes the problems of cancer patients where NHS treatment is withdrawn when a patient pays privately for drugs.
Harvey's parents, who live in Edmonton, have decided to go to America and risk losing NHS support.
'I'm so very angry,' Mrs Parry, 46, said.
'At the moment he has to scrabble around on the floor.
'All he wants to do is put his Wellington boots on and splash in the puddles like other children.
'But he can't because the NHS doesn't have the right legs.
'We are going to New York and my son will come back walking.
'We'll worry about the consequences of this decision later.'
Harvey was struck down with meningitis at 15 months. He was in a coma for three weeks.
When he left hospital he was given false legs, but they were too big.
Every time a pair of legs was made for Harvey, there was something wrong with them.
Enfield PCT said it would treat Harvey but would not 'provide any support or maintenance to prostheses supplied in America'.
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